The Oxytocin Landscape

The science of oxytocin (OT) and its potential therapeutic benefit in PWS continues to be a high profile, priority research area for the PWS community and for FPWR. Several studies have taken place investigating oxytocin as a therapeutic for PWS, however, there is still much more we need to know. There is a lot going on, and that’s very encouraging but, like oxytocin itself, the path is complex.

Dr. Theresa Strong has written a new Research Blog topic onthe Oxytocin Landscape and we hope you will take some time to carefully review this post. While Dr. Strong blogged on Oxytocin as a promising potential for treatment in PWS in2011 as well as earlier this year, her latest post highlights recent advances in understanding the role of Oxytocin in PWS as well as the current landscape of this important and complicated area of PWS research.

Click here to learn more about Oxytocin and the current research landscape.


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We Are Coming To Austin, Texas, September 25-27, 2015

Educational, motivational and empowering, the FPWR Annual Conference is a unique experience that combines immersion into PWS research and opportunity to develop lifelong friendships with families who are traveling the same journey as you.

Presentations from leading PWS researchers

  • Dr. Jennifer Miller
  • Dr. Jeffrey Zigman
  • Elizabeth Roof, MA
  • Dr. Rachel Wevrick

Age-centered breakout sessions

  • PROMPT speech therapy
  • Implementing a sensory diet
  • When and how to choose behavioral interventions
  • Special education advocacy

Updates on ongoing PWS clinical trials

  • AZP-531 – Alize
  • Carbetocin – Ferring
  • Beloranib – Zafgen
  • RM-493 – Rhythm
  • Diazoxide (DCCR) – Essentialis



One SMALL Step Virtual 5k

Have you heard about the One SMALL Step Virtual 5k? This first year event is fun for everyone! Whether you are an avid runner or this will be your first 5k – our virtual 5k is for you! Click here to get started!

Thank You!

Big thanks to our incredible One Small Step Hosts! Thanks to your efforts, we’re hopeful  that 2015 will be our biggest fundraising year yet! Upcoming events include:

  • August 15 – Happy Valley Goose Bay, NL hosted by Kristin Simms
  • August 22 – Riviere des Prairies hosted by Marco Del Cane
  • August 29 – Ste Julie, QC hosted by Patricia Helle
  • August 29 – Hixson, TN hosted by Dianne Bryden
  • August 29 – Montreal, QC hosted by Adriana De Luca
  • August 30 – Richmond Hill, ON hosted by Irene McDougal

Click here for a complete listing of OSS events.