Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

Filter

Global PWS Registry Supports 1st FDA-Approved Treatment for People with PWS

June 9, 2025

Behind the recent FDA approval of the first treatment for hyperphagia in PWS is a powerful story of patient data and community collaboration—driven by the Global PWS Registry. Through our PATH for PWS study, families shared their lived experiences with

From NICU to Leading the Walk: Miles’ Story and the Power of One Small Step

June 4, 2025

When Carolyn’s son Miles was diagnosed with Prader-Willi syndrome, she faced a new world of unknowns. But it didn’t take long for her to channel that uncertainty into action. Now, in her second year hosting a One Small Step walk,

Inside the Cell: MAGEL2 Mislocalization and What It Means for SYS Research

May 27, 2025

What if the key to treating a rare genetic condition lies not just in whether a protein is present—but in where it ends up inside the cell? This is the case with the MAGEL2 protein, which plays a critical role

RareCAP: An Important Resource Bringing Expert PWS Care Within Reach

May 19, 2025

Finding a doctor who understands Prader-Willi syndrome (PWS) isn’t always easy, especially in urgent or emergency situations. RareCAP is a free tool that puts trusted PWS medical guidance into the hands of those who need it most: families, caregivers, and

FPWR Announces 1st Round of 2025 Grants

May 14, 2025

We are pleased to announce the recipients of our first round of grants for 2025, totaling $1,198,949 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing research in Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome

Clinical Trials Matter: Three PWS Families Share Their Views

May 13, 2025

Harmony Biosciences recently met with three families impacted by Prader-Willi syndrome (PWS) to better understand their views on clinical trials for PWS symptoms including excessive daytime sleepiness. A lot has changed since PWS was first identified and named in 1956,

New research brings hope for treating the sleep challenges faced by children with PWS and SYS.

Can We Treat Circadian Rhythm Disruption in PWS? New Research Offers Hope

May 7, 2025

Human beings have adapted to our planet's 24-hour days. The body goes through daily cycles that affect things like metabolism, physical functions, and mood—these 24-hour cycles are called the circadian rhythm. What you may not know is that this adaptation

PWS Awareness Month: How You Can Support Research

April 22, 2025

May is PWS Awareness Month. Awareness is where it starts. Action moves research forward. Whether you have 30 seconds or 30 days, there’s a way for you to make a difference. Here are 3 ways you can take action this

Three family members smiling together in a field of yellow flowers, with one child giving a thumbs-up and mountains in the background.

Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings

April 10, 2025

Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on supporting siblings and recognizing serious mental health challenges in her new guide. Raising a family is never easy, and parenting a child with PWS adds

Previous 9 10 11 12 13

Older Articles

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Subscribe to FPWR News Updates

Heading 1