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Psychologist Lauren Roth on Behavior, Mental Health and PWS [PODCAST]

July 23, 2019

Podcast Transcript Susan Hedstrom: Thank you for joining us on today’s FPWR podcast! This is Susan Hedstrom, Executive Director for the Foundation and joining me today is Lauren Schwartz-Roth, one of FPWR’s earliest board members, former FPWR board president and

PWS Mindfulness and Meditation Trailblazer Singh To Speak at 2019 Conference

June 25, 2019

The ability to regulate emotions is an essential skill for a happy life, and for many of us this can be challenging to accomplish! When left unmanaged, high levels of stress can lead to both mental and physical ailments which

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FPWR Announces First Round of 2019 Grant Awards for PWS Research [VIDEO]

May 22, 2019

The Foundation for Prader-Willi Research announces our first round of Research Awards in 2019 totaling $786,000. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, has awarded over $12,000,000

Improving Clarity of Speech in PWS [2018 CONFERENCE VIDEO]

May 7, 2019

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript

PWS Clinical Trials Consortium Meets with FDA for a Critical Path Innovation Meeting

April 25, 2019

The PWS-Clinical Trial Consortium (PWS-CTC) met with FDA on November 19th for a 90-min session, to discuss the progress made in the last three years to overcome clinical trial challenges in PWS. With an increasing number of clinical trials in

A glimpse into the life of a high school senior, who also has PWS.

April 22, 2019

Gillian Segall is an 18-year-old high school senior from Chicago, IL who happens to have PWS. We asked Gillian to tell us a bit about her life as a high school senior and her plans for afterward. Graduating from high

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Schaaf-Yang Syndrome: What Do We Know? [2018 CONFERENCE VIDEO]

April 11, 2019

UConn and FPWR Create Stem Cell Biobank for PWS

April 11, 2019

A new collaboration between UConn Health and the Foundation for Prader-Willi Research will create a centralized, high quality biobank of stem cells to help researchers better understand Prader-Willi syndrome. FPWR and the UConn-Wesleyan University Stem Cell Core will jointly support

PWS Registry Data: Friendships in PWS

March 12, 2019

Most people with PWS are social and enjoy spending time with family and friends. However, making and keeping friends can be difficult for people with PWS. Because of food issues, people with PWS often need supervision and monitoring, which can

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