Foundation for Prader-Willi Blog (63)

Announcing our Second Round of PWS Research Grants from 2016!

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada and FPWR-UK, is thrilled to announce our second round of PWS research recipients for 2016! Eight outstanding projects were selected for funding, totaling $746,200 in s...

December 12, 2016 Read More

Topics: Research

My Son Is More Than PWS: He Is A Miracle

A special contribution by guest blogger Heather Osterman Heather shared her story via our Stories of Hope questionnaire.

December 9, 2016 Read More

Topics: Stories of Hope

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Many children with PWS are affected by early language delays. If those delays aren't addressed, the affects can be far-reaching, not just in school, but beyond. Research on these delays shows a number of therapies to be very effective, but it isn't r...

December 7, 2016 Read More

Topics: Research

Believe in Yourself and Believe in Your Child

A special contribution by guest blogger Lisa Miller Lisa shared her story via our Stories of Hope questionnaire.

December 2, 2016 Read More

Topics: Stories of Hope

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Many of the symptoms of PWS, including hyperphagia and behavior issues, likely originate in atypical structure and/or function of neurons in the brain. This presents an additional challenge to designing drug therapies for PWS, because drugs targeted ...

December 1, 2016 Read More

Topics: Research

Zafgen Donates Hyperphagia Questionnaire to FPWR for Use in Clinical Trials

Zafgen, Inc., has donated its Hyperphagia Questionnaire for Clinical Trials (HQ-CT) instrument to FPWR to help enable the development of potential therapies for Prader-Willi syndrome. The HQ-CT is derived from a well-established, caregiver-reported q...

November 30, 2016 Read More

Topics: News

Your Child Can Do Anything! Don't Limit Them

A special contribution by guest blogger Jennifer Hannabass Jennifer shared her story via our Stories of Hope questionnaire.

November 25, 2016 Read More

Topics: Stories of Hope

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter who was struggling having a brother with Prader-Willi Syndrome. Of course I pro...

November 23, 2016 Read More

Topics: Stories of Hope

Improving Social Functioning in PWS [VIDEO]

“People with PWS have a real need to actually connect with others and have relationships." This was one of the many valuable insights shared by Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and other panelists addressing social...

November 21, 2016 Read More

Topics: Research

FPWR Blog

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Announcing our Second Round of PWS Research Grants from 2016!

My Son Is More Than PWS: He Is A Miracle

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Believe in Yourself and Believe in Your Child

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Zafgen Donates Hyperphagia Questionnaire to FPWR for Use in Clinical Trials

Your Child Can Do Anything! Don't Limit Them

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

Improving Social Functioning in PWS [VIDEO]

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