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Foundation for Prader-Willi Blog | News

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Your 2025 Impact: FPWR Fundraising Wrapped

Every breakthrough, every milestone, and every step forward in 2025 had one thing in common: our community. Because supporters like you showed up. You shared your story. You asked others to stand with you. And it mattered.
January 9, 2026 Read More

Topics: News

Global PWS Registry 2.0 Launches with New VYKAT Module

The Global PWS Registry is powered by the dedication of patients and families who share their PWS experiences. Each piece of data collected helps unlock insights that fuel scientific discoveries and treatment breakthroughs.
January 8, 2026 Read More

Topics: News

Positive Preliminary Results with Setmelanotide and Plans for Evaluation of RM-718 for PWS

Rhythm Pharmaceuticals has shared positive preliminary results from its exploratory Phase 2 trial of setmelanotide in people with PWS and announced, pending successful completion of this phase, plans to advance setmelanotide into a Phase 3 trial. Add...
December 18, 2025 Read More

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Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum

As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new treatment pathways, and meaningful improvements in care for people with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS).
December 3, 2025 Read More

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Harvesting Hope 2025: Walk, Run, or Shake Your Tailfeather

Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 16! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a ge...
October 7, 2025 Read More

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Welcoming Karla Blair and Nicci Peterson to the FPWR Team

We’re excited to introduce two new members of the FPWR team: Karla Blair and Nicci Peterson! As parents, advocates, and passionate members of the PWS community, Karla and Nicci bring heartfelt commitment and a personal perspective to our work. Their ...
August 12, 2025 Read More

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The FPWR Therapeutic Accelerator Program: Bridging Research and Development

Much of the research supported by FPWR is considered “basic science” or “discovery” research. The goal of these projects is to make measurements and collect data that define Prader-Willi syndrome (PWS) and advance our understanding of the molecular b...
April 24, 2025 Read More

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May is #PWSAwareness Month!

Each May, our community comes together to shine a light on Prader-Willi syndrome and accelerate the research that is driving new treatments and transforming lives. Since 2010, PWS Awareness Month has mobilized families, advocates, and allies across t...
April 22, 2025 Read More

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DCCR (VYKAT XR) Approved for Treating Hyperphagia in Prader-Willi Syndrome

We are thrilled to share that the FDA has approved the first treatment for hyperphagia (excessive hunger) in individuals with Prader-Willi syndrome (PWS). VYKAT XR (previously referred to as DCCR) is now approved for adults and children 4 years of ag...
March 26, 2025 Read More

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About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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