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Foundation for Prader-Willi Blog | News (3)

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Global PWS Registry Advisory Board Changes

The Global PWS Registry launched in 2015 as a central repository of caregiver and patient entered data about living with PWS. The goals of the Registry are to better understand the full spectrum of PWS symptoms, expedite the completion of PWS clinica...
February 9, 2023 Read More

Topics: News

A Message From FPWR's Newest Research Team Member: Lisa Burnett

Hello FPWR friends! I’m Lisa Burnett and I am thrilled to share that I’ve recently joined the FPWR team. I’d love to share a little bit about myself so that you all can get to know me.
December 1, 2022 Read More

Topics: News

Harvesting Hope Distance Challenge Returns

Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters joined us for the challenge last year covering a whopping 3,750 miles during the 7-week period. How far can we get this year? That's up to you!
September 29, 2022 Read More

Topics: News

FPWR Announces 2022 Champion of Hope Award Winner

The Foundation for Prader-Willi Research (FPWR) is thrilled to announce the recipient of the 2022 Champion of Hope Award, James Resnick, PhD. The Champion of Hope Award was established to recognize individuals who have made impactful contributions to...
September 28, 2022 Read More

Topics: News

Unique Art Auction Benefits PWS Research

Twenty paintings are available to the highest bidders in a unique art auction benefiting the Foundation for Prader-Willi Research (FPWR).
September 26, 2022 Read More

Topics: News

Top 10 Reasons to Attend the 2022 PWS Family Conference

Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at this year’s FPWR Family Conference! Here are the top 10 reasons you need to be there:
August 1, 2022 Read More

Topics: News

FPWR 2022 Conference Speakers Announced

You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October in Chicago, IL. Are you ready to join like-minded game-changers with direct access to the people, knowledge, and inspiration you need to help your chi...
July 19, 2022 Read More

Topics: News

FPWR Welcomes Natalie Brenneman to the Team!

Natalie is a veteran to our community of dedicated movers and shakers and has been involved with our Foundation since the birth of her son in 2015. We are excited to bring her onboard so she can put her talents and experience to use supporting other ...
November 9, 2021 Read More

Topics: News

FPWR, FAST, ASF, and Dup15q Unite to Fund Newborn Screening Grant

The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics (FAST), Angelman Syndrome Foundation (ASF), and Dup15q Alliance announce a collaborative initiative to fund the addition of chromosome 15 conditions to Ear...
November 2, 2021 Read More

Topics: News, Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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Covina, CA 91723

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