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    News (4)
    Managing Behavior and Flexibility in PWS: Expert Strategies
    Behavioral challenges are one of the most complex parts of Prader-Willi syndrome (PWS). Anxiety, rigidity, difficulty with transitions, and emotional overwhelm can affect daily life at home, at school, and in the community. Families often ask: Will treating hyperphagia improve
    Caregiver Perspectives: Insights on the COMPASS-PWS Trial
    Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial of intranasal carbetocin did not meet its primary or secondary endpoints and would not advance further, the Foundation for Prader-Willi Research (FPWR) convened a patient forum to
    Child holding a sign that reads “We Trot For… My Future!” outdoors, with the Harvesting Hope Distance Challenge logo displayed beside them.
    Harvesting Hope 2026: Walk, Run, and Shake Your Tailfeather
    Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 15! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a
    Honoring Leaders Who Inspire: 2025 FPWR Award Recipients
    Each year, the Foundation for Prader-Willi Research (FPWR) recognizes outstanding individuals who have made a profound difference in the lives of those affected by Prader-Willi syndrome. This year, we honored two remarkable leaders for their contributions to the PWS community:
    Welcoming Karla Blair and Nicci Peterson to the FPWR Team
    Welcoming Karla Blair and Nicci Peterson to the FPWR Team
    We’re excited to introduce two new members of the FPWR team: Karla Blair and Nicci Peterson! As parents, advocates, and passionate members of the PWS community, Karla and Nicci bring heartfelt commitment and a personal perspective to our work. Their
    Post-Conference Glow: Highlights from United in Hope 2025
    Still United, Still Inspired We're still riding the wave of connection, energy, and inspiration from United in Hope 2025! This incredible event brought together three powerful organizations - the Foundation for Prader-Willi Research (FPWR), the Prader-Willi Syndrome Association | USA
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    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah