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Foundation for Prader-Willi Blog | Research (39)

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Cartwheels for a Cure

FRIENDS OF FPWR SPOTLIGHT We've flipped for this fundraising idea! David and Andrea Piercey of Massachusetts took a little inspiration from the ALS ice bucket challenge that has taken social media by storm...and literally flipped it! Just last month,...
September 18, 2014 Read More

Topics: Research

PWS Awareness Segment on ABC's 20/20

On Friday, August 15, 2014, an estimated 3.8 million viewers tuned in to watch a 20/20 special report titled "My Strange Affliction" on ABC. The segment featured, among others, a young woman named Hannah Wilkinson, and her mother Tonya, and shared dr...
August 19, 2014 Read More

Topics: Research

FPWR Proudly Awards $1.2 Million to Promising Science in Prader-Willi Syndrome (PWS)

Los Angeles, CA, August 7, 2014– The Foundation for Prader-Willi Research (FPWR), a nonprofit organization dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome (PWS), announced today the awarding of $1....
August 11, 2014 Read More

Topics: Research

Sleep Apnea In Infants and Children with PWS: Is a Sleep Study On Your "To-Do" List?

In a study from The Hospital for Sick Children, the authors recommend that all infants with PWS be screened for sleep disordered breathing (SDB) and receive oxygen treatment as needed. SDB is an area of great concern for the PWS community. SDB includ...
July 29, 2014 Read More

Topics: Research

FPWR Announces Request For Applications

The Foundation for Prader-Willi Research (FPWR) announces the availability of funds to support innovative research relevant to PWS. FPWR is particularly interested in supporting projects that will lead to new interventions to alleviate the symptoms a...
July 23, 2014 Read More

Topics: Research

Thank you Wendy Kosmak and LinkedIn for supporting PWS Research!

Each year LinkedIn promotes employee philanthropy through a two-week fundraising challenge at it’s Chicago office. Employees are encouraged to join one of ten fundraising teams supporting a charity of the team’s choosing. The team that raises the mos...
July 23, 2014 Read More

Topics: Research

Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events "Outside the Walk":
July 16, 2014 Read More

Topics: Research

PWS at the FDA

On Tuesday, June 17, key leaders and scientific staff members at the FDA took time out of their busy schedules to learn about the serious challenges of PWS, to hear about our loved ones’ unmet medical needs, and to discuss ways to work with the PWS c...
June 22, 2014 Read More

Topics: Research

PWS iPS cells are helping researchers make breakthroughs

One of the exciting breakthroughs in PWS research in recent years has been the development of induced pluripotent stem cells or “iPSCs”. Although there is tremendous excitement among the scientific community about iPSCs, many parents, patients, and a...
May 29, 2014 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Phone: 888-322-5487
Email: info@fpwr.org

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