Foundation for Prader-Willi Blog | Stories of Hope (7)

Singing, Dancing, Changing the World: Our Mighty Girl With PWS

A special contribution by Noelle Scalzo Our story started out as so many others do, with the dream of a "perfect" and "healthy" baby. We wanted to bring just one more tiny human into our world, a sibling for our now 4-year-old Danica to play with and...

September 22, 2017 Read More

Topics: Stories of Hope

Proud Brothers Cheer On Their Sister With PWS

A special contribution by Jessica Mitchell What did you feel when you first heard the words “Prader-Willi syndrome”? Did you feel sadness? Anger? Relief? If you were anything like me, you felt the “normal” slip right through your fingertips. You read...

September 1, 2017 Read More

Topics: Stories of Hope

'We Believe There Will Be Relief For Children With PWS': A Mom's Story

A special contribution by One SMALL Step host Samantha Kalasek Once upon a time, there was a "boy mom" blessed to be outnumbered. She believed she was living a very basic tale until she turned the page and realized it was actually a choose-your-own-a...

August 4, 2017 Read More

Topics: Stories of Hope

Your Child With PWS Can Have a Beautiful Life

A special contribution by guest blogger Loraine Hernandez When Mila was born, everything felt uncertain. The early days were marked by fear, unanswered questions, and a hospital experience that left her mother struggling to imagine what the future mi...

July 7, 2017 Read More

Topics: Stories of Hope

For This Dad, PWS Means Exceeding Expectations

A special contribution by guest blogger Blake Brenneman When our son, Evan, was diagnosed with Prader-Willi syndrome (PWS), I assumed his progress would be slow. But he has exceeded every expectation. At just 15 months old, his understanding of the w...

June 30, 2017 Read More

Topics: Stories of Hope

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

A special contribution by guest blogger Laura Capone When Tommy was born, his parents were given a long list of things he might never do. The outlook for his future felt uncertain, filled with low expectations and what-ifs. But years later, Tommy has...

June 23, 2017 Read More

Topics: Stories of Hope

A Father's Story: Fighting the PWS Battle With Shared Love, Clear Vision

A special contribution by guest blogger, dad, and One Small Step host Adam Larson An expectant father has a crystal clear vision. You are at the moment when all you will ever amount to is about to be tested. All of your talents will be called upon, a...

June 9, 2017 Read More

Topics: Stories of Hope

Mom Sees Past Obstacles of PWS to Find Hope In Research and Community

A special contribution by guest blogger and One SMALL Step Washington, DC, co-host Dominique Deleage Our son Charlie is now 10 years old. We found out that he had PWS when he was three weeks old. We had never heard of the disorder. I still remember t...

June 2, 2017 Read More

Topics: Stories of Hope

My Dreams Are Bigger Now Than Before My Son's PWS Diagnosis

A special contribution by guest blogger Laura Hollatz I am a dreamer. Always have been, and always will be. When I was a little girl, I wanted to be Wonder Woman. I also dreamt of living in a huge castle with all my friends that was made out of candy...

May 24, 2017 Read More

Topics: Stories of Hope

Foundation for Prader-Willi Blog | Stories of Hope (7)

Categories

Singing, Dancing, Changing the World: Our Mighty Girl With PWS

Proud Brothers Cheer On Their Sister With PWS

'We Believe There Will Be Relief For Children With PWS': A Mom's Story

Your Child With PWS Can Have a Beautiful Life

For This Dad, PWS Means Exceeding Expectations

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

A Father's Story: Fighting the PWS Battle With Shared Love, Clear Vision

Mom Sees Past Obstacles of PWS to Find Hope In Research and Community

My Dreams Are Bigger Now Than Before My Son's PWS Diagnosis

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