Foundation for Prader-Willi Blog | Stories of Hope (7)

Two Moms, 5 Years and $1.7M for PWS Research

Becky McWilliams and Samantha (Sam) Chipetz are a force to be reckoned with! In addition to managing successful careers and juggling a family, therapy appointments and play dates, these two hard working moms have been fundraising for PWS research for...

February 9, 2018 Read More

Topics: Stories of Hope

10 Lessons In Strength From a PWS Mom and Fundraiser

Larisa Martiniak, mother of two, hosted her first One Small Step walk this fall in Berkeley, California. We asked her to share a bit of her perspective on what it’s like to find out her child has PWS, and how it has empowered her to take action in th...

December 8, 2017 Read More

Topics: Stories of Hope

Taking Charge and Changing the Futures of Our Children With PWS

A special contribution by One Small Step host Lisa Matesevac As we embark on hosting our 5th One SMALL Step event, I stop and think about how this all got started for our family. Like most families, we are VERY busy. At different times, we are EXTRA ...

October 27, 2017 Read More

Topics: Stories of Hope

Singing, Dancing, Changing the World: Our Mighty Girl With PWS

A special contribution by Noelle Scalzo Our story started out as so many others do, with the dream of a "perfect" and "healthy" baby. We wanted to bring just one more tiny human into our world, a sibling for our now 4-year-old Danica to play with and...

September 22, 2017 Read More

Topics: Stories of Hope

Proud Brothers Cheer On Their Sister With PWS

A special contribution by Jessica Mitchell What did you feel when you first heard the words “Prader-Willi syndrome”? Did you feel sadness? Anger? Relief? If you were anything like me, you felt the “normal” slip right through your fingertips. You read...

September 1, 2017 Read More

Topics: Stories of Hope

'We Believe There Will Be Relief For Children With PWS': A Mom's Story

A special contribution by One SMALL Step host Samantha Kalasek Once upon a time, there was a "boy mom" blessed to be outnumbered. She believed she was living a very basic tale until she turned the page and realized it was actually a choose-your-own-a...

August 4, 2017 Read More

Topics: Stories of Hope

Your Child With PWS Can Have a Beautiful Life

A special contribution by guest blogger Loraine Hernandez When Mila was born, everything felt uncertain. The early days were marked by fear, unanswered questions, and a hospital experience that left her mother struggling to imagine what the future mi...

July 7, 2017 Read More

Topics: Stories of Hope

For This Dad, PWS Means Exceeding Expectations

A special contribution by guest blogger Blake Brenneman When our son, Evan, was diagnosed with Prader-Willi syndrome (PWS), I assumed his progress would be slow. But he has exceeded every expectation. At just 15 months old, his understanding of the w...

June 30, 2017 Read More

Topics: Stories of Hope

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

A special contribution by guest blogger Laura Capone When Tommy was born, his parents were given a long list of things he might never do. The outlook for his future felt uncertain, filled with low expectations and what-ifs. But years later, Tommy has...

June 23, 2017 Read More

Topics: Stories of Hope

Foundation for Prader-Willi Blog | Stories of Hope (7)

Categories

Two Moms, 5 Years and $1.7M for PWS Research

10 Lessons In Strength From a PWS Mom and Fundraiser

Taking Charge and Changing the Futures of Our Children With PWS

Singing, Dancing, Changing the World: Our Mighty Girl With PWS

Proud Brothers Cheer On Their Sister With PWS

'We Believe There Will Be Relief For Children With PWS': A Mom's Story

Your Child With PWS Can Have a Beautiful Life

For This Dad, PWS Means Exceeding Expectations

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

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