Topics: Stories of Hope, SYS
In 2014, when Emma Nelson was born, NICU staff told her parents, Kim and Justin, to prepare for the worst. But for the next two years, Emma had no diagnosis. Kim and Justin were directed from one specialist to the next trying to find answers to their...
A special contribution by Jessica Mitchell What did you feel when you first heard the words “Prader-Willi syndrome”? Did you feel sadness? Anger? Relief? If you were anything like me, you felt the “normal” slip right through your fingertips. You read...
Topics: Stories of Hope
A special contribution by One SMALL Step host Samantha Kalasek Once upon a time, there was a "boy mom" blessed to be outnumbered. She believed she was living a very basic tale until she turned the page and realized it was actually a choose-your-own-a...
Topics: Stories of Hope
A special contribution by guest blogger Loraine Hernandez Loraine shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? With the horrible scenario at the hospital when she was born, I really didn't hav...
Topics: Stories of Hope
A special contribution by guest blogger Blake Brenneman Blake shared his story via our Stories of Hope questionnaire.
Topics: Stories of Hope
A special contribution by guest blogger Laura Capone Laura shared her story via our Stories of Hope questionnaire. Has your child exceeded your expectations? A million times yes! We were given a very low expectation for Tommy's future, but he is a wa...
Topics: Stories of Hope
A special contribution by Lindsey Larson, Host of Live Life Full Lewistown, IL Being a first time mom is hard. Having triplets makes it even more challenging. Add to that a rare diagnosis, and it’s ... well, interesting is the only word that I can fi...
Topics: Stories of Hope
A special contribution by guest blogger, dad, and One Small Step host Adam Larson An expecting father has crystal clear vision. You are at the moment when all you will ever amount to is about to be tested. All of your talents will be called upon and ...
Topics: Stories of Hope
A special contribution by guest blogger and One SMALL Step Washington, DC, co-host Dominique Deleage Our son Charlie is now 10 years old. We found out that he had PWS when he was three weeks old. We had never heard of the disorder. I still remember t...
Topics: Stories of Hope