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Foundation for Prader-Willi Blog | Stories of Hope (8)

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Our Grandchild With PWS Is Our Shining Star, Our Lovebug, Our Hero

A special contribution by guest bloggers Amy and Bob Chipetz Brandon will be 5 years old on May 24. We remember seeing him, our first grandson, shortly after birth. We were all so elated about the arrival of our daughter and son-in-law's firstborn. W...
May 19, 2017 Read More

Topics: Stories of Hope

Mom's Advice for PWS Parents: 'Watch Your Baby Fly!'

A special contribution by guest blogger Jennifer Terranova We all have dreams when we plan a family. We all believe our babies will be the cutest, sweetest, most amazing little things in the whole wide world. We are all determined that our future lit...
May 12, 2017 Read More

Topics: Stories of Hope

Happy Dreams Return for Mom, as Baby Becomes Little Boy

A special contribution by guest blogger Becky McWilliams When I became pregnant with my second child, I had endless dreams. I dreamt about whether this mysterious little being would be a girl or another boy. I dreamt about the relationship that he or...
May 5, 2017 Read More

Topics: Stories of Hope

A Beautiful Life: One Mother's PWS Journey from Fear to Hope

A special contribution by guest blogger and One SMALL Step host Rachael Petterson Every night, for several weeks following my daughter Mae’s birth, I stayed up late reading medical journal articles and studies. I was determined to figure out why Mae ...
April 28, 2017 Read More

Topics: Stories of Hope

One Small Step for Lincoln: PWS Research Gives Me Hope

A special contribution by guest blogger Kristine Mosca There was nothing more exciting than to hear that we were expecting our fourth child. I had delivered three beautiful children already and felt more than ready to welcome our fourth baby into the...
April 21, 2017 Read More

Topics: Stories of Hope

I Turn to PWS Research for Hope, and to Other PWS Moms for Help

A special contribution by guest blogger Maegan Richard When Cade was born, he was fragile and still — a tiny baby who kept doctors guessing and parents on edge. At just four weeks old, Cade was diagnosed with Prader-Willi syndrome (PWS). The genetici...
March 31, 2017 Read More

Topics: Stories of Hope

Your Child Can and Will Have Successes You Can Barely Imagine

A special contribution by guest blogger Dan Yashinsky Dan shared his story via our Stories of Hope questionnaire.
March 17, 2017 Read More

Topics: Stories of Hope

What I Wish They Had Told Me About PWS

A special contribution by guest blogger Amber Rector The day I found out I was pregnant, I imagined myself carrying to term, pushing out a healthy baby, and going home the standard two to three days later. I would arrive home with my new bundle of jo...
March 10, 2017 Read More

Topics: Stories of Hope

Don't Worry About the Small Stuff and Be Patient

A special contribution by guest blogger Teri Douglas When Jacob was diagnosed with Prader-Willi syndrome (PWS), his mom couldn’t have imagined the remarkable young man he would become. Today, Jacob continues to exceed every expectation.
March 3, 2017 Read More

Topics: Stories of Hope

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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