Foundation for Prader-Willi Blog | Stories of Hope (8)

A Beautiful Life: One Mother's PWS Journey from Fear to Hope

A special contribution by guest blogger and One SMALL Step host Rachael Petterson Every night, for several weeks following my daughter Mae’s birth, I stayed up late reading medical journal articles and studies. I was determined to figure out why Mae ...

April 28, 2017 Read More

Topics: Stories of Hope

One Small Step for Lincoln: PWS Research Gives Me Hope

A special contribution by guest blogger Kristine Mosca There was nothing more exciting than to hear that we were expecting our fourth child. I had delivered three beautiful children already and felt more than ready to welcome our fourth baby into the...

April 21, 2017 Read More

Topics: Stories of Hope

I Turn to PWS Research for Hope, and to Other PWS Moms for Help

A special contribution by guest blogger Maegan Richard When Cade was born, he was fragile and still — a tiny baby who kept doctors guessing and parents on edge. At just four weeks old, Cade was diagnosed with Prader-Willi syndrome (PWS). The genetici...

March 31, 2017 Read More

Topics: Stories of Hope

Your Child Is So Much More Than a PWS Diagnosis

A special contribution by guest blogger Melissa Demand Melissa shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? We were lucky that in the NICU and through our geneticist, we only heard about what ...

March 24, 2017 Read More

Topics: Stories of Hope

Your Child Can and Will Have Successes You Can Barely Imagine

A special contribution by guest blogger Dan Yashinsky Dan shared his story via our Stories of Hope questionnaire.

March 17, 2017 Read More

Topics: Stories of Hope

What I Wish They Had Told Me About PWS

A special contribution by guest blogger Amber Rector The day I found out I was pregnant, I imagined myself carrying to term, pushing out a healthy baby, and going home the standard two to three days later. I would arrive home with my new bundle of jo...

March 10, 2017 Read More

Topics: Stories of Hope

Don't Worry About the Small Stuff and Be Patient

A special contribution by guest blogger Teri Douglas When Jacob was diagnosed with Prader-Willi syndrome (PWS), his mom couldn’t have imagined the remarkable young man he would become. Today, Jacob continues to exceed every expectation.

March 3, 2017 Read More

Topics: Stories of Hope

There is Goodness and Hope Up Ahead

A special contribution by guest blogger Anna Beasley Anna shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? In so many different ways, she just keeps fighting. We weren't given a lot of hope at fir...

February 24, 2017 Read More

Topics: Stories of Hope

Everything and More: A Father's Journey Into the World of PWS

A special contribution by guest blogger Tony Chambers When I was 10 years old, I realized I was never going to see my dad again. He didn’t die, he just packed up and disappeared one day. I was 4 when my mom knocked on his empty apartment door, wonder...

February 17, 2017 Read More

Topics: Stories of Hope

Foundation for Prader-Willi Blog | Stories of Hope (8)

Categories

A Beautiful Life: One Mother's PWS Journey from Fear to Hope

One Small Step for Lincoln: PWS Research Gives Me Hope

I Turn to PWS Research for Hope, and to Other PWS Moms for Help

Your Child Is So Much More Than a PWS Diagnosis

Your Child Can and Will Have Successes You Can Barely Imagine

What I Wish They Had Told Me About PWS

Don't Worry About the Small Stuff and Be Patient

There is Goodness and Hope Up Ahead

Everything and More: A Father's Journey Into the World of PWS

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