New call-to-action
New call-to-action
New call-to-action

Foundation for Prader-Willi Blog | Stories of Hope (9)

How One Family Turned March Madness into PWS Awareness

Nikol Maher, mom to Jack, turned her fear into determination using the family's love of sports.

Topics: Stories of Hope

Harvesting Hope for PWS: Rachael Fischer and Julie Foge

While most of us spent this last Thanksgiving morning prepping a feast, watching football or entertaining family, Rachael Fischer and Julie Foge rose before the sun to host more than 850 runners for the 2nd annual Harvesting Hope 5K race. The event t...

Topics: Stories of Hope

The Changing Force of My Daughter's Future ... Me

A special contribution by guest blogger Gwyn Spearman

Topics: Stories of Hope

Dream, Believe, Achieve

I’m a mom, so you know my memory is full of as many holes as Swiss cheese. I can’t remember much of anything that took place more than 5 years ago. On particularly fine days, I may be lucky to remember something that was said within the past 5 minute...

Topics: Stories of Hope

A Dream I Can Believe In

When I was pregnant with Lily, I had all of these dreams of what it would be like to have a baby. I read all of the books on parenting I could get my hands on: books about what to expect while I was expecting, how to have the happiest baby on the blo...

Topics: Stories of Hope

My Child is My Inspiration: If He Can Do It, So Can I

A special contribution by guest blogger Karina O'brien How has your child exceeded your expectations? When we received Noel's diagnosis, we were told he wouldn't be walking before his 5th birthday and would be NG fed until the age of 2. Noel is almos...

Topics: Stories of Hope

I Learned from My Daughter That Life is About Love

A special contribution by guest blogger Chelsea Balumas How has your child exceeded your expectations? Sienna is so strong. She is such a fighter, and she just keeps surprising us with her strides in her development. She was our first child so we don...

Topics: Stories of Hope

Look for What is Good, Not What is Wrong

A special contribution by guest blogger Jeanne Huffman Jeanne shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

My Son Is More Than PWS: He Is A Miracle

A special contribution by guest blogger Heather Osterman How has your child exceeded your expectations? When Max was born, our diagnosis was missed. We just lived with trying to help Max with his challenges, not really understanding what was happenin...

Topics: Stories of Hope