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Foundation for Prader-Willi Blog | Stories of Hope (9)

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Your Child Can and Will Have Successes You Can Barely Imagine

A special contribution by guest blogger Dan Yashinsky Dan shared his story via our Stories of Hope questionnaire.
March 17, 2017 Read More

Topics: Stories of Hope

What I Wish They Had Told Me About PWS

A special contribution by guest blogger Amber Rector The day I found out I was pregnant, I imagined myself carrying to term, pushing out a healthy baby, and going home the standard two to three days later. I would arrive home with my new bundle of jo...
March 10, 2017 Read More

Topics: Stories of Hope

Don't Worry About the Small Stuff and Be Patient

A special contribution by guest blogger Teri Douglas When Jacob was diagnosed with Prader-Willi syndrome (PWS), his mom couldn’t have imagined the remarkable young man he would become. Today, Jacob continues to exceed every expectation.
March 3, 2017 Read More

Topics: Stories of Hope

There is Goodness and Hope Up Ahead

A special contribution by guest blogger Anna Beasley Anna shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? In so many different ways, she just keeps fighting. We weren't given a lot of hope at fir...
February 24, 2017 Read More

Topics: Stories of Hope

Everything and More: A Father's Journey Into the World of PWS

A special contribution by guest blogger Tony Chambers When I was 10 years old, I realized I was never going to see my dad again. He didn’t die, he just packed up and disappeared one day. I was 4 when my mom knocked on his empty apartment door, wonder...
February 17, 2017 Read More

Topics: Stories of Hope

How One Family Turned March Madness into PWS Awareness

Nikol Maher, mom to Jack, turned her fear into determination using the family's love of sports.
February 10, 2017 Read More

Topics: Stories of Hope

Harvesting Hope for PWS: Rachael Fischer and Julie Foge

While most of us spent this last Thanksgiving morning prepping a feast, watching football or entertaining family, Rachael Fischer and Julie Foge rose before the sun to host more than 850 runners for the 2nd annual Harvesting Hope 5K race. The event t...
February 3, 2017 Read More

Topics: Stories of Hope

The Changing Force of My Daughter's Future ... Me

A special contribution by guest blogger Gwyn Spearman
January 27, 2017 Read More

Topics: Stories of Hope

A Dream I Can Believe In

When I was pregnant with Lily, I had all of these dreams of what it would be like to have a baby. I read all of the books on parenting I could get my hands on: books about what to expect while I was expecting, how to have the happiest baby on the blo...
January 7, 2017 Read More

Topics: Stories of Hope

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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