Foundation for Prader-Willi Blog

FPWR

Announcing the Launch of the Global Schaaf-Yang Syndrome Registry

FPWR is pleased to announce the launch of the Global Schaaf-Yang Syndrome Registry, an online registry for individuals with Schaaf-Yang syndrome (SYS) and their parents/caregivers.

March 17, 2025 Read More

Topics: SYS

Your Impact 2024

Everything we do is made possible by you—our dedicated supporters and partners on this journey. Since 2003, FPWR has been committed to finding and funding the most promising research to advance treatments for Prader-Willi and Schaaf-Yang syndromes. T...

March 13, 2025 Read More

School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School

Harmony Biosciences recently interviewed three families about their experiences with Prader-Willi syndrome (PWS), excessive daytime sleepiness, and school.

March 10, 2025 Read More

The Power of Representation in the PWS Community

When Karine’s son, Olivier, was diagnosed with Prader-Willi Syndrome (PWS), she searched for something beyond medical information—she was looking for people who looked like him. She wanted to see a future for her child, one that felt familiar and hop...

March 4, 2025 Read More

Topics: Parents, Partners, PWS People, Advocacy

FPWR Announces Executive Committee Appointments and Welcomes New Board Members for 2025

The Foundation for Prader-Willi Research (FPWR) is excited to announce key updates to its board leadership and membership for 2025. With these changes, FPWR continues to prioritize its mission of eliminating the challenges of Prader-Willi syndrome (P...

February 24, 2025 Read More

Urgent Action Needed: NIH Cuts Threaten Critical Research

On February 7th, the National Institutes of Health (NIH) announced a drastic, immediate reduction in overhead funding for universities, medical centers, and research institutions—cutting indirect costs to a flat 15% rate. This significant reduction j...

February 20, 2025 Read More

Aardvark IPO Brings $94M to PWS Drug Development

Aardvark Therapeutics achieved a major milestone last week by launching its initial public offering (IPO) and joining the NASDAQ as a publicly traded company (ticker symbol AARD). This marks an exciting step forward for Aardvark and for the entire Pr...

February 17, 2025 Read More

New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS

Individuals with PWS often exhibit rigidity, obsessive-compulsive tendencies, emotional outbursts, as well as unusual thoughts and behaviors. However, the onset and severity of these behaviors vary among individuals with PWS depending on age, genetic...

February 7, 2025 Read More

New Resource for Parents: Helping Siblings Thrive in a PWS Family

The challenges of Prader-Willi syndrome extend beyond the individual diagnosed to the entire family. Siblings growing up in a household with a person with PWS may need extra support to help them navigate their new normal and the unique family situati...

February 4, 2025 Read More

Topics: Resource Development, Parents

FPWR Blog

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FPWR

Recent Posts

Announcing the Launch of the Global Schaaf-Yang Syndrome Registry

Your Impact 2024

School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School

The Power of Representation in the PWS Community

FPWR Announces Executive Committee Appointments and Welcomes New Board Members for 2025

Urgent Action Needed: NIH Cuts Threaten Critical Research

Aardvark IPO Brings $94M to PWS Drug Development

New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS

New Resource for Parents: Helping Siblings Thrive in a PWS Family

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