Foundation for Prader-Willi Blog | hopefull

For lack of a better phrase to emphasize the heaviness and intensity of the beginning: those days were hard.

When our family learned that Miles had Prader-Willi syndrome, everything changed. I had never heard of PWS before, and I was in shock. I was scared and heartbroken for Josh and Carolyn. All I could think was, What are we going to do?