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Foundation for Prader-Willi Blog | Advocacy

From Holidays to Baby Showers: Your Custom Card Can Make A Difference

Did you know that by simply sending a card, you have the power to make a difference in the lives of those affected by Prader-Willi syndrome? It's true! Every time you send a card, you not only spread awareness about this rare genetic syndrome but als...

Topics: Advocacy

Generous Donor Ignites the $25,000 Challenge

Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to introduce you to our generous matcher: Maria.

Topics: Advocacy

FPWR 2023 Family Conference - New Parents Welcome!

You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO.

Topics: Parents, Adults, Children 0-3, Advocacy

Harmony Biosciences releases a statement to the PWS Community

A recent report from Scorpion Capital, a financial research group that specializes in 'activist short selling', makes several allegations about potential side effects of the drug Wakix (pitolisant), which is currently being evaluated in a clinical tr...

Topics: Advocacy