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Research (19)

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

December 7, 2016

Many children with PWS are affected by early language delays. If those delays aren't addressed, the affects can be far-reaching, not just in school, but beyond. Research on these delays shows a number of therapies to be very effective, but

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

November 3, 2016

Many individuals with PWS experience significant disruption of daily life as a result of sleep issues. Daytime sleepiness, abnormal REM sleep, narcolepsy, and cataplexy are common sleep-related symptoms of PWS, however their underlying cause is unknown. We had the privilege

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Mental Health Professionals Release 10 PWS Research Recommendations

October 13, 2016

Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS. The recommendations are included below, from the

Bearden Research Investigates Early Signs of Psychosis in PWS

September 5, 2016

Behavior and mental health issues are an important part of Prader-Willi syndrome (PWS). In particular, one of the most challenging aspects for families to face is the onset of psychosis (i.e., mental illness characterized by symptoms, such as delusions or

Social Communication: Its Role In Behavior & Cognitive Development In PWS

August 29, 2016

In social communication, the ability to appropriately recognize and process facial expressions is critical to understanding others' emotional and mental state. People can often "read" emotions on someone's face, including happiness, sadness, fear, surprise and anger. Scientifcally, this is called

Abnormal Sleep Patterns in PWS Are Focus of LaSalle's Research

August 9, 2016

Abnormal sleep patterns in PWS make sleep disorders common for people with Prader-Willi syndrome. These are associated with central and obstructive apnea, disrupted sleep, and excessive daytime sleepiness. But why exactly do individuals with PWS have abnormal sleep patterns? Dr.

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

August 2, 2016

Adolescents and adults with PWS often struggle with temper outbursts, compulsive behaviors, and self-injurious behaviors such as skin-picking. These behavioral challenges impact the quality of life for those with PWS and for their families and caregivers. There are a number

Mental Health in PWS – Mindfulness, Exercise May Help

July 11, 2016

Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches

New CRISPR Gene Editing Options Focus on RNA

June 27, 2016

If you pay attention to science 'buzz', you've probably heard of CRISPR technology. This technology allows scientists to precisely modify DNA sequences. First adapted for genome editing in 2013, use of CRISPR systems has exploded in research labs, allowing for

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