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Foundation for Prader-Willi Blog | Research (18)

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Neuren Pharmaceuticals Adds Prader-Willi Syndrome to Development Pipeline

Neuren Pharmaceuticals has added Prader-Willi syndrome to their development pipeline for compound NNZ-2591 following a successful study in a pre-clinical model. The study showed compelling benefits for treating key symptoms of PWS.
March 17, 2021 Read More

Topics: Research

Radius Health Adds Synthetic CBD to Development Pipeline for PWS

Radius Health has acquired a cannabidiol (CBD) compound and is preparing a PWS clinical trial using it. Radius Health believes that the drug has potential to reduce hyperphagia and improve anxiety symptoms in PWS. The news is of special interest to t...
March 9, 2021 Read More

Topics: Research

Deconstructing Anxiety in PWS [2020 CONFERENCE VIDEO]

In this 88‑minute video, Dr. Deepan Singh discusses what anxiety looks like in PWS, what leads to it, and how can it be treated. Learn from this PWS mental health presentation, which concludes with Dr. Singh answering questions from the audience at t...
February 10, 2021 Read More

Topics: Research, Family Conference

Paving the Way for Treatments for PWS

In the last 5 years, more than 15 human clinical trials have taken place evaluating possible treatments for PWS. FPWR has been closely involved in each and every one: contributing the patient perspective to aspects of study design, funding or helping...
January 26, 2021 Read More

Topics: Research

IMPACT 2020

In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges of PWS. We would like to thank all of our supporters: everything we do is made possible by you! Here are just a few of our accomplishments from this pa...
January 19, 2021 Read More

Topics: Research

PWS Probiotics Research Addresses Constipation, Abdominal Fat and More

Two recently released studies represent good first steps to identifying possible uses of probiotic supplementation in PWS. The studies looked at effects of probiotic use on constipation, abdominal fat, fasting insulin and insulin resistance levels, w...
January 12, 2021 Read More

Topics: Research

4 Reasons to be Excited for PWS Research in 2021

My son with PWS turns 12 years old this year. He experiences many of the challenges of PWS and, like every parent, I dream of the day when he can live a FULL and independent life. This is why I am as excited as ever as we enter 2021 …
January 5, 2021 Read More

Topics: Research

FPWR Announces Second Round of 2020 Grant Awards for PWS Research

The Foundation for Prader-Willi Research announces our second round of Research Awards in 2020 totaling $666,566. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, h...
December 29, 2020 Read More

Topics: Research

Return of Results: Destiny-PWS by Soleno Therapeutics [2020 CONFERENCE VIDEO]

In this hour-long video, the CEO of Soleno Therapeutics and researcher Dr. Jennifer Miller go into detail on the design and results of the DCCR phase 3 clinical trial. The session also covers next steps for making the drug available to treat PWS, dis...
December 28, 2020 Read More

Topics: Research, Family Conference

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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