Foundation for Prader-Willi Blog | News (10)

The Patient-Centered Outcomes Research Institute (PCORI) has awarded FPWR $30,000 to support real world data research readiness in the Prader-Willi syndrome community! This support was awarded to FPWR as a Eugene Washington PCORI Engagement Award.

All individuals are born with two copies of chromosome 15: one copy comes from the mother, the other the father. In the case of Prader-Willi syndrome, the paternal copy is missing a portion of the chromosome (deletion), or is gone altogether(UPD), bu...

For the first time ever, the Foundation for Prader-Willi Research will be represented November 6th on the streets of New York at the largest marathon in the world – The TCS New York City Marathon! “We are excited to partner with the TCS New York City...