Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    Stories of Hope
    News
    Parents
    Family Conference
    Global PWS Registry
    Clinical Trials
    Schaaf-Yang Syndrome
    Treatments
    Behavior
    Sleep
    Advocacy
    Clinical Trials Opportunities
    Resource Development
    hopefull
    Endocrinology/Growth Hormone
    Mental Health
    Children 0-3
    Clinical Issues
    Hunger Satiety
    Hyperphagia
    Learning
    Research Blog
    Children 12-18
    Children 3-6
    Genetic Therapy
    Scoliosis
    Therapeutic Development
    Aging
    Blood Clots
    Children 6-12
    Executive Function
    Genetics and Imprinting
    Obesity and Energy Balance
    PWS Research
    Partners
    Trial Results
    VYKAT
    Video Gallery
    Volunteer
    cognition
    hormones
    hypogonadism
    interventions
    one small step
    skin picking
    trial endpoints

    Parents (4)
    Early School Years — Ages 3-8 [2023 Conference Video]
    In this 1 hour and 52-minute video, Dr. Anastasia Dimitropoulos of the PRETEND Program, Staci Zimmerman, and Cindy Szapacs discuss social strategies, IEPs, and behavior in the early school years for children with PWS. Click below to watch the video.
    analysis-of-hyperphagia-questionnaire-for-clinical-trials-hq-ct-scores
    Analysis of Hyperphagia Questionnaire for Clinical Trials Scores
    The Hyperphagia Questionnaire for Clinical Trials (HQ-CT) is typically completed by caregivers for individuals with PWS who are enrolled in clinical trials. The questionnaire is designed to evaluate changes in hyperphagia during the course of the trial. Despite the fact
    standards-of-care-ages-10-2023-conference-video
    Standards of Care Ages 10+ [2023 Conference Video]
    In this one hour and 25-minute video, Dr. Diane Stafford, Endocrinologist at Stanford University School of Medicine, provides an overview of care for people with PWS over age 10 including medical needs, currently available medications, supplements, labs, and sex hormones.
    Previous 1 2 3 4

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah