Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    Stories of Hope
    News
    Parents
    Family Conference
    Global PWS Registry
    Clinical Trials
    Schaaf-Yang Syndrome
    Behavior
    Resource Development
    Advocacy
    Sleep
    Clinical Trials Opportunities
    Research Blog
    Treatments
    hopefull
    Learning
    Mental Health
    Clinical Issues
    Hunger Satiety
    Therapeutic Development
    Children 0-3
    Children 12-18
    Children 3-6
    Genetic Therapy
    Hyperphagia
    Scoliosis
    ages: 4-7
    Children 6-12
    Endocrinology/Growth Hormone
    Executive Function
    Genetics and Imprinting
    Obesity and Energy Balance
    PWS Research
    Partners
    Trial Results
    Video Gallery
    Volunteer
    cognition
    interventions
    skin picking

    Parents

    Collage of attendees connecting at the FPWR Family Conference alongside a small-group workshop led by a speaker.
    FPWR 2026 Family Conference: Deep Dive Workshops
    At this year's FPWR Family Conference, you'll find more than traditional presentations. Explore interactive workshops featuring expert guidance, practical strategies, and meaningful conversations with other families. Behavior & Mental Health: Ages 5 and Up Behavioral and mental health challenges can
    How Two Moms Turned Fear Into Action Through One Small Step
    When Amy Reinmuller first considered hosting One Small Step Baton Rouge, the idea stayed in the “maybe someday” category for a long time. Fear kept getting in the way. “What if nobody comes?” she remembered thinking. “What if I can’t
    Featured image for the 2026 FPWR Family Conference New Parent Track featuring a family with a young child and text reading “New Parent Track – 2026 FPWR Family Conference – PHL26
    What New Parents Can Expect at the FPWR Family Conference
    The early years after a PWS diagnosis come with a lot of questions. The New Parent Track is designed to help you build knowledge, confidence, and connections with families who understand exactly where you are. What You'll Find in the
    Addison's Army Started with One Small Step
    The night before One Small Step Maryland, Jen Lieberman was worried nobody would come. By the next morning, her family was scrambling to find more raffle tickets. "My brother-in-law literally ran to Staples," Jake laughed. "We were looking around thinking,
    Parents Seek Answers, Leaders Step Forward
    In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the center of the story was Kathryn McGhee, a mother navigating the daily realities of Prader-Willi syndrome while also helping shape a growing research movement
    Global Prader-Willi Syndrome Registry logo over a blue background with data charts.
    The Global PWS Registry: Turning Lived Experience Into Better Care
    Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated. In a recent episode of the PWS United podcast, members of FPWR’s research team shared how ten years of family participation in the Global PWS Registry
    Making Space for Caregiver Well-Being
    Self-Care for Caregivers: Your Well-Being Matters
    Caring for a child or adult with Prader-Willi syndrome (PWS) often means juggling medical appointments, behavior plans, daily routines, and the emotional ups and downs that come with them. Too often, caregivers put their own needs last — not because
    Save the Date for FPWR’s 2026 PWS Family Conference & Workshops
    Save the Date for FPWR’s 2026 PWS Family Conference & Workshops
    Mark your calendars and join us October 9–10, 2026, as parents, caregivers, and medical professionals from across the country gather in Philadelphia, Pennsylvania for FPWR’s 2026 PWS Family Conference — a two-day event designed to connect, learn, and be inspired.
    1 2 3 4

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah