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Foundation for Prader-Willi Blog | Advocacy (2)

What Does Effective PWS Treatment Advocacy Look Like?

Last fall, the PWS community was excited to see two drugs complete Phase III clinical trials: both DCCR and Carbetocin hold promise in addressing hyperphagia, a top priority for PWS families. Both studies had positive results, but neither reached sta...

Topics: Research, Advocacy

Take Action for PWS Research: 4 FUN and EASY Ideas To Help You Get Started

There has never been a more critical time to keep research pushing forward. We need your help to raise the funds needed to advance PWS research. Whether you have never asked for donations or you are a veteran fundraiser, here are 4 fun and creative i...

Topics: Advocacy

Sign-on to Our Letter to Make Sure YOUR Voice Is Heard By the FDA

In a disappointing decision, the FDA has stated that they will not review DCCR for the treatment of PWS without an additional controlled clinical trial. (Read more about this recent news in our blog: FDA requires additional trial to support NDA submi...

Topics: Advocacy