Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Advocacy

Featured image for the 2026 FPWR Family Conference New Parent Track featuring a family with a young child and text reading “New Parent Track – 2026 FPWR Family Conference – PHL26
What New Parents Can Expect at the FPWR Family Conference
The early years after a PWS diagnosis come with a lot of questions. The New Parent Track is designed to help you build knowledge, confidence, and connections with families who understand exactly where you are. What You'll Find in the
RareCAP: A New Resource Bringing Expert PWS Care Within Reach
Finding a doctor who understands Prader-Willi syndrome (PWS) isn’t always easy, especially in urgent or emergency situations. That’s why we’re excited to introduce a new tool that puts trusted PWS medical guidance into the hands of those who need it
PWS BIPOC Affinity Group
The Power of Representation in the PWS Community
When Karine’s son, Olivier, was diagnosed with Prader-Willi Syndrome (PWS), she searched for something beyond medical information—she was looking for people who looked like him. She wanted to see a future for her child, one that felt familiar and hopeful.
Help Drive Progress: Become an Advocate Reviewer for PWS Research
A special contribution by guest blogger Will Greene. The future of PWS research depends on more than just scientists—it also needs the voices of parents, caregivers, and PWS advocates to guide meaningful progress. Becoming an Advocate Reviewer for FPWR is
generous-donor-ignites-the-25000-challenge
Generous Donor Ignites the $25,000 Challenge
Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to introduce you to our generous matcher: Maria. Maria, can you tell us about your personal connection to PWS and how it has impacted your family? Life
FPWR 2023 Family Conference - New Parents Welcome!
You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver, CO. New Parents have their own track with experts and specialist to help them during this important time. Join us for a pre-conference
Harmony Biosciences releases a statement to the PWS Community
A recent report from Scorpion Capital, a financial research group that specializes in 'activist short selling', makes several allegations about potential side effects of the drug Wakix (pitolisant), which is currently being evaluated in a clinical trial to treat excessive
Next Steps In PWS Advocacy
For more than a decade, FPWR has partnered with families and other PWS groups (PWSA|USA, IPWSO) to advocate for PWS treatments. We've worked diligently to build resources that address the FDA’s call for patient experience data, demonstrating high disease burden

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Evan and Dr. Fallah