European PWS blood bank coordinator
Funding Summary
Dr. Tauber is leading a European effort to collect blood samples on infants and children with PWS to monitor changes in hormones over time. This funding supports a blood bank coordinator to collect clinical data on birth, growth, endocrine functions and feeding behavior in newly diagnosed patients with PWS. {Funded in partnership with Prader-Willi France}
Lay Abstract
Dr. Tauber is leading a European effort to collect blood samples on infants and children with PWS to monitor changes in hormones over time. This funding will support a blood bank recruitment coordinator, who will work to collect clinical data on birth, growth, endocrine functions and feeding behavior in newly diagnosed patients with PWS.
Research Outcomes:
High unacylated ghrelin levels support the concept of anorexia in infants with prader-willi syndrome. Beauloye V, Diene G, Kuppens R, Zech F, Winandy C, Molinas C, Faye S, Kieffer I, Beckers D, Nergårdh R, Hauffa B, Derycke C, Delhanty P, Hokken-Koelega A, Tauber M. Orphanet Journal of Rare Diseases. 2016 May 4;11(1):56.
Funded Year:
2013
Awarded to:
Maithe Tauber, MD, Ph.D.
Amount:
$35,000
Institution:
Centre de Référence Prader-Willi, Marin Hospital, France