FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: December 12 2025 - 05:53 PM
Mark your calendars and join us October 9–10, 2026, as parents, caregivers, and medical professionals from across the country gather in Philadelphia, Pennsylvania for FPWR’s 2026 PWS Family Conference — a two-day event designed to connect, learn, and be inspired. This year’s conference will be...
Source: FPWR Blog
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Published: November 11 2025 - 11:00 AM
We are pleased to announce the recipients of our second round of grants for 2025, totaling $925,117 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing innovative research and bold initiatives in Prader-Willi syndrome (PWS) and Schaaf-Yang...
Source: FPWR Blog
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Published: November 11 2025 - 04:45 AM
Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From infancy through adulthood, hormone-related challenges shape growth, development, metabolism, and overall health. In this 2025 FPWR Conference presentation, Dr. Jennifer Miller, one of the world’s leading...
Source: FPWR Blog
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Published: November 11 2025 - 09:00 AM
Clinical trials are the bridge between discovery and real-world treatments, and families in the Prader-Willi syndrome (PWS) community play a critical role in making them possible.
Source: FPWR Blog
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Published: October 10 2025 - 10:00 AM
